Identifying causes of perceptual differences in problematic activities of daily life between patients with COPD and proxies: A qualitative study

Abstract

Background/aim: Proxies of patients with COPD are often unable to identify the patients’ most important problematic activities of daily life (ADLs). The aim was to explore causes of perceptual differences between patients with COPD and their proxies about the problematic ADLs of the patient. Methods: Ten open structured interviews were conducted in the presence of both the patient and proxy. Patients’ five most important problematic ADLs identified by the couple were compared and discussed. For data analysis, open coding, axial coding and selective coding were conducted. Results: Ten main causes were identified: differences in the level of satisfaction, or acceptance; estimation of own capabilities; problematic ADL goes unnoticed; proxy is not present during problematic ADL; problematic ADL is not performed (often or anymore), or not (longer) talked about; masked by another problematic ADL; value judgement; solution for problematic ADL. Conclusion: The causes of perceptual differences between patients and proxies about patients’ problematic ADLs were related to both the patient's and the proxy's perception.