Valoración de aspectos éticos y metodológicos en un estudio cualitativo con personas usuarias de Oncología Pediátrica

Abstract

Background: In the context of a qualitative research with health care users in Paediatric Oncology and their family members, a self-assessment tool regarding ethical and methodological aspects of the study has been designed and implemented. Methods: Qualitative research with health care users in Paediatric Oncology and companions, in four hospitals from the Andalusian Public Healthcare System. Development and implementation of a self-assessment tool. Descriptive, semantic and pragmatic content analysis and triangulation conducted by the research team. Outcomes: The members of the research team highlight: 1. The usefulness of a cartoon-style Informed Consent form in a qualitative study with children, within a broader approach to research ethics, 2. The favourable assessment of the creative techniques, stressing the need for a differentiated application, and 3. The importance of reflecting on the experience of the research process. Conclusions: The application of a self-assessment tool is identified as a useful tool for evaluating ethical, methodological and self-reflective aspects in a qualitative study conducted with minors.