Assessing health-related quality of life in disorders of sex development: Phase I - Item generation

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Abstract

Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical [1]. Only anecdotal, retrospective reports exist regarding the experiences of children with DSD and their families, with no concurrently collected data on the specific stressors children and families face or on their processes of adaptation. © 2011 Springer Science+Business Media, LLC.

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Sandberg, D. E., Gardner, M. D., Kogan, B. A., Grimley, M. B., Cohen, L., Alpern, A. N., & Quittner, A. L. (2011). Assessing health-related quality of life in disorders of sex development: Phase I - Item generation. Advances in Experimental Medicine and Biology, 707, 143–146. https://doi.org/10.1007/978-1-4419-8002-1_31

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