Wellness promotion in children with chronic physical illness

Abstract

A large number of US children live with chronic illness. This chapter describes, from an ecological perspective, research on several factors that can improve quality of life and overall wellness among children with chronic physical illness. Effective and healthy coping for patients and their families requires support from multiple levels (individual, family, institutional, and community levels) in order to minimize the impact on typical development. This chapter underlines the importance of patient- and family-centered psychoeducation and care, comprehensive interdisciplinary biopsychosocial formulations, effective training for providers on risk and protective factors, mental health and wellness support, as well as systemic factors such as integrated care and health advocacy. Patients, parents, providers, educators, communities, and policy makers can work together to support physically ill children by promoting illness-prevention and health-promotion while honoring individual strengths and cultural values.