PaísDI: Feasibility and effectiveness of an advocacy program for adults with intellectual disability and their stakeholders' groups in Chile

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Abstract

Background: People with intellectual disability in Chile face individual and collective barriers to social participation. Lack of knowledge about their rights and tools for effective self-advocacy seem to be key elements that need to be improved to facilitate participation. Method: We present PaísDI, a 16 h long manualised program created by self-advocates in collaboration with an interdisciplinary team, with four modules: rights and intellectual disability, leadership in intellectual disability, effective communication and financial considerations of social projects. This quasi-experimental study had 349 participants, divided in three groups: people with intellectual disability, relatives and professionals. Feasibility and effectiveness where measured. Results: The program is shown to be viable and effective, especially in its impact on self-perception for self-advocacy activities. Conclusion: The discussion highlights Chile's historic debt in creating policies that promote self-determination, knowledge and the empowerment of people with intellectual disability, to bolster their participation as citizens.

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Tenorio, M., Aparicio, A., Arango, P. S., Fernández, A. K., Fergusson, A., Turull, J., & Pizarro, R. (2022). PaísDI: Feasibility and effectiveness of an advocacy program for adults with intellectual disability and their stakeholders’ groups in Chile. Journal of Applied Research in Intellectual Disabilities, 35(2), 633–638. https://doi.org/10.1111/jar.12951

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