The long-term challenges faced by stroke survivors and their caregivers following a stroke in Bangladesh: a qualitative study

Abstract

Background Strokes result in devastating consequences to both the survivors and caregivers, therefore it is important that it is appropriately managed and caregivers are well supported. In order to do this effectively, we need a better understanding of the challenges faced by stroke survivors and their caregivers, in a country with limited provisions for rehabilitation. Our aim was to explore the experiences of stroke survivors and their caregivers’ 1-year post discharge from stroke rehabilitation in Bangladesh. Methods Twenty stroke survivors and their caregivers were selected for our qualitative, single-centred study. Participants were chosen using a convenience sampling method. A semi-structured questionnaire was used to collect data during face-to-face interviews. Six themes were deciphered following analysis of the data collected. Results There was a low return to work rate and poor awareness of stroke and its risk factors. There was no provision of rehabilitation whilst in hospital or at home and a lack of advice on how to access rehabilitation after hospital. Stroke survivors and caregivers’ experienced physical, social and emotional wellbeing challenges. Conclusions Schemes to increase the awareness of stroke and its risk factors are needed to reduce the incidence of stroke. Earlier access to rehabilitation and ongoing support and training through implementation of a stroke pathway may improve outcomes for stroke survivors and caregivers. Future research should investigate the challenges of returning to work and the experiences of stroke survivors and caregivers who did not receive rehabilitation.