Objective: To identify factors that people with a traumatic brain injury and their families perceived as helping to improve their quality of life. Methods: Three focus groups and five interviews were conducted with a total of 37 participants: 14 persons with traumatic brain injury and 23 caregivers. A content analysis was conducted. The constant comparative method was applied. Results: We detected five factors that improved the quality of life of persons with a traumatic brain and their families: 1) Informal support (family and friends); 2) formal support (counseling, employment, built and bureaucratic environment); 3) type of clinical characteristics; 4) social participation, and 5) social visibility. Conclusions: The needs expressed by our participants primarily focused on social and emotional factors. For persons with severe traumatic brain injury attempting to achieve the best possible community integration, a new semiology is required, not limited to medical care, but also involving social and psychological care tailored to the needs of each individual and family and their environment.
Gifre, M., Gil, Á., Pla, L., Roig, T., & Monreal-Bosch, P. (2015). What happens after the accident? Psychosocial needs of people with traumatic brain injury and their families. Gaceta Sanitaria, 29, 60–65. https://doi.org/10.1016/j.gaceta.2015.02.002