Traumatic brain injury: Unmet support needs of caregivers and families in Florida

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Abstract

Sustaining a Traumatic Brain Injury results in familial strain due to the significant impact the injury has upon the role and function of individuals and their families at home and in the community. Using the Stress Process Model of Caregiving, a caregiver needs assessment survey was developed and conducted to better understand the needs of individuals with a Traumatic Brain Injury and their caregivers. Survey results indicate that caregivers experience many challenges including unmet needs in areas of relational supports such as maintaining relationships, long-term emotional and financial support for themselves and the survivor, and the need for a patient or caregiver advocate. Implications for future practice are presented.

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Dillahunt-Aspillaga, C., Jorgensen-Smith, T., Ehlke, S., Sosinski, M., Monroe, D., & Thor, J. (2013). Traumatic brain injury: Unmet support needs of caregivers and families in Florida. PLoS ONE, 8(12). https://doi.org/10.1371/journal.pone.0082896

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