Zebra finches as a model species to understand the roots of rhythm

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The denomination of rare diseases includes a heterogeneous group of pathologies characterized by their low prevalence, estimated in less than 5 cases each 10.000 inhabitants. They are chronic diseases, difficult to diagnose, without a complete therapeutic response. It envolves decreasing life expectancy and significant problems to affected individuals. Its adverse impact extends to the family. The work carried out in this context has the following objectives: a) to analyze parents' perception with regard to the consequences of their children disease and their care and support needs and b) to determine the influence of the associated disability. 33 parents of children diagnosed with rare and unusual illnesses have been interviewed, grouped in two subgroups according to the kind of cognitive or physic suffering. Results reveals that the seriousness of the disease's physical symptoms has influence on parents perceptions of quality of life. Regardless of the diagnosis, parents, which show high levels of emotional disorders, indicates the necessity of information and training relating to the management of the emotional and behavioural aspects involved. (PsycINFO Database Record (c) 2016 APA, all rights reserved)




Spierings, M. J., & Cate, C. T. (2016). Zebra finches as a model species to understand the roots of rhythm. Frontiers in Neuroscience. Frontiers Media S.A. https://doi.org/10.3389/fnins.2016.00345

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