Functional skills of individuals with fragile X syndrome: A lifespan cross-sectional analysis

  • Bailey D
  • Raspa M
  • Holiday D
 et al. 
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Abstract

Parents of 1,105 male and 283 female children with fragile X syndrome
described functional skill attainment in eating, dressing, toileting,
bathing/hygiene, communication, articulation, and reading. The majority
of adult children had mastered many skills independently. Most adults
were verbal, used the toilet, dressed, ate independently, bathed, and
used a towel independently. However, some skills were not as
well-developed, such as using complex sentences, reading, or speaking at
a typical rate. As expected, significant differences were found between
males and females. The findings highlight major skill attainments,
identify skills that should be the target of specific intervention
programs, suggest variable trajectories to be tested more precisely
through direct assessments and longitudinally, and provide baseline data
for treatment studies.

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Authors

  • Donald B. Bailey

  • Melissa Raspa

  • David Holiday

  • Ellen Bishop

  • Murrey Olmsted

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