Genetic research with stored biological materials: Ethics and practice

  • Wolf L
  • Bouley T
  • McCulloch C
  • 20


    Mendeley users who have this article in their library.
  • 13


    Citations of this article.


If a CRC declined to participate, did not respond, or withdrew from our study after agreeing to participate, we replaced it with the next-largest CRC at the same institution (if one existed). Because we found no readily accessible information about the relative size of SPOREs and because some institutions have several SPOREs, we randomly selected one SPORE from the institutions that had more than one. [...] without explicit procedures for coding biological materials, investigators may omit steps that are necessary to protect the confidentiality of research data.

Get free article suggestions today

Mendeley saves you time finding and organizing research

Sign up here
Already have an account ?Sign in

Find this document


  • Leslie E. Wolf

  • Timothy A. Bouley

  • Charles E. McCulloch

Cite this document

Choose a citation style from the tabs below

Save time finding and organizing research with Mendeley

Sign up for free