The health and social care needs of family carers supporting adults with autistic spectrum disorders

  • Hare D
  • Pratt C
  • Burton M
 et al. 
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The families of 26 adults with autistic spectrum disorders (ASDs) who
either lived at home or maintained close contact with their families
were interviewed about their social and psychological needs related to
caring for the person with ASD. In contrast to previous studies of
familial carers of children with ASDs, a strong association between
parental emotional distress and unmet need was found. Parents also
reported a need for more autism-specific intervention and support for
adults with ASDs. The study illustrates the continuing and
under-reported role of families in supporting adults with ASDs.

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  • D J Hare

  • C Pratt

  • M Burton

  • J Bromley

  • E Emerson

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