Partners of mutation-carriers for Huntington's disease: Forgotten persons?

  • Decruyenaere M
  • Evers-Kiebooms G
  • Boogaerts A
 et al. 
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Abstract

This study focuses on psychological distress and coping strategies in partners of tested persons 5 years after predictive testing for Huntington's disease. A total of 16 carrier-couples and 17 noncarrier-couples participated in the study. Self-report questionnaires were used, assessing depression level, anxiety, intrusive and avoidance thoughts and coping strategies. Partners of carriers have as much distress as carriers, and for some distress variables even more (P

Author-supplied keywords

  • Disenfranchised grief
  • Huntington's disease
  • Partners
  • Predictive testing
  • Psychological impact

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Authors

  • Marleen Decruyenaere

  • Gerry Evers-Kiebooms

  • Andrea Boogaerts

  • Koen Demyttenaere

  • René Dom

  • Jean Pierre Fryns

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