Providers' knowledge of genetics: A survey of 5915 individuals and families with genetic conditions

  • Harvey E
  • Fogel C
  • Peyrot M
 et al. 
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Abstract

Individuals affected by genetic conditions are increasingly likely to seek information about inheritance and risk factors from their primary care physicians rather than a geneticist, but several studies suggest that few health care providers are capable of fulfilling that role or are comfortable doing so. Acknowledging that the adoption of new genetics knowledge and technologies is often patient-driven, we asked affected individuals and family members about their experiences in encounters with a variety of nongenetics-trained health care providers.

Author-supplied keywords

  • Advocacy
  • Families
  • Genetics education
  • Patients
  • Providers' knowledge

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Authors

  • Erin K. Harvey

  • Chana E. Fogel

  • Mark Peyrot

  • Kurt D. Christensen

  • Sharon F. Terry

  • Joseph D. McInerney

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