Experiences with euthanasia requests of persons with SCI in Belgium

Abstract

Introduction: Living with SCI remains a challenge and some patients fear or are faced with an inability to master this challenge sufficiently to regain a satisfactory quality of life. The suicide rate within the population with SCI is elevated compared with the general population. Especially now that life expectancy of persons with SCI and age at onset of SCI are increasing, caregivers of persons with SCI can be confronted with requests for end-of-life care or even assistance in dying. Euthanasia remains worldwide a controversial topic, but has rarely been discussed in the context of SCI. Case presentation: The medical history and the results of in-depth interviews with three persons with tetraplegia, between 36 and 88 years old, with a profound and repeated request for euthanasia testify of the importance of an open-minded dialogue concerning end-of-life questions, in which all options can be considered, and limits of patients’ capacities and best care results are acknowledged. Conclusion: These cases suggest that a well-regulated strictly controlled legal framework, handled with prudence and proficiency, can be an added value to the care for persons with SCI.