Well-being and support preferences of siblings of individuals with a neurodevelopmental condition in regional and remote Australia: a mixed methods investigation

Abstract

Siblings of individuals with neurodevelopmental conditions are vulnerable to poor mental health and well-being, with additional challenges for those in rural areas. Purpose: This convergent parallel mixed methods study examined the role of protective factors (resilience, family functioning, and social support) in explaining sibling well-being, alongside this population’s support preferences and experiences. Materials and Methods: We surveyed 93 siblings of individuals with a neurodevelopmental condition aged between 16–30 years, currently or previously living in regional and remote areas of Australia. The majority of the sample identified as women (79.6%), with an average age of 23 years (SD = 4.6). Results: A hierarchical multiple regression showed resilience and social support combined, but not family functioning, accounted for a significant 58% of variance in well-being. A reflexive thematic analysis of qualitative data identified that siblings were often self-reliant through necessity, and desired services and supports that acknowledged them first as individuals, not just siblings. Siblings commonly accessed social support through their local communities, and preferred support from people who understood neurodevelopmental conditions and the sibling role. Conclusion: Providing accessible, resilience-based interventions for siblings, and empowering local communities to provide greater support will benefit the well-being of rural siblings and their families.