Mending the gaps: A systems-focused rapid review on paediatric palliative care for health leaders

Abstract

In Canada, the provision of Paediatric Palliative Care (PPC) services faces unique barriers due to a large geography and dispersed service population. This review identifies global challenges and strategies to inform efforts in strengthening Canadian PPC access and delivery. Utilizing a rapid review methodology, two databases were searched for publications between 2014 and 2024. Five hundred and ninety-five studies were imported, and 31 retained. Challenges identified in the literature included (i) uncertainty with team roles and responsibilities, (ii) lack of PPC familiarity, and (iii) navigating fragmented health systems. Recommendations included (i) enhancing education, (ii) streamlining access, and (iii) increasing awareness. Concerted effort between health leaders is essential to implement solutions towards a more integrated care system–one that considers the needs of all children. Prioritizing nationwide awareness, access, and capacity-building will ensure PPC meets the needs of all children and families, regardless of location.