Facing Democratic Challenges: The Role of Civil Society Organizations in the Governance of Genomic Technologies

Abstract

The discovery of CRISPR has fuelled the debate surrounding new genomic techniques (NGTs). This is of paramount importance given their potential impact on societies and ecosystems. Despite early enthusiasm about the potential of NGTs to democratize genome editing, it is increasingly evident that their introduction poses substantial challenges from a democratic point of view. Although greater engagement with the public sphere is urgently needed, it is something that is currently not widely studied from a political science standpoint. In this paper we offer an overview of the actors who have mobilized in relation to NGTs, with a particular focus on unduly neglected actors, such as civil society organizations. We also consider the views of those who have made proposals regarding the governance of NGTs more generally. The perspectives of these actors are not easy to reconcile with those of stakeholders, and we reflect on the democratic implications of this aspect.