Family experiences regarding fasting and thirst in the perioperative period of children with cleft lip and palate

Abstract

Objective: To understand the experience of family members of children with cleft lip and palate in relation to fasting and thirst during the perioperative period of primary and secondary surgeries. Method: This is a descriptive-exploratory study with a qualitative approach, based on the theoretical framework of Family-Centered Care, conducted at the Associação de Apoio ao Fissurado Lábio-Palatal de Maringá, Paraná, Brazil. The semi-structured interviews with family members were conducted between August and September 2024, via Google Meet®, recorded, fully transcribed and analyzed through content analysis, thematic modality. The study was approved by the Ethics Committee for Research with Human Beings. Results: Seven family members of children with cleft lip and palate participated. Three categories emerged that demonstrate that fasting and thirst in the surgical context can generate emotional distress not only in the children, but also in their caregivers. Family members reported shared food restrictions, use of toys and prior conversation with the child as strategies used during the period. Clear communication from the team, consistent with family-centered care, reduces family discomfort. Conclusion: Fasting and thirst in the perioperative period cause emotional distress to the child and family, making individualized management focused on family support essential, in line with Family-Centered Care.