Predictive genetic testing in children: The need for psychological research

Abstract

Recent advances in molecular genetics have led to the ability to test individuals for an increasing range of genetic diseases and conditions that may not become apparent until later life. There are a variety of views among health professionals about the desirability of offering predictive genetic testing to children, as reflected in a variety of clinical practices. Little is known about the views of parents and children on this matter. Similarly, little is known about the ability of children to make informed decisions about such tests, and the psychological consequences of testing for children and their families. This article reviews research that is relevant to these questions and highlights the areas in which studies are urgently needed. © 1996 The British Psychological Society.