Including Speaking and Nonspeaking Autistic Voice in Research

  • Lebenhagen C
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Abstract

Autistic individuals frequently report that their experiences are minimized or reinterpreted by well-meaning nonautistic parents, researchers, educators, and allies. Although the inclusion of autistic voice is improving, obstacles persist, particularly in research with individuals who might be described as non- or minimally speaking. In this perspective piece, I present three arguments: (1) ableist assumptions and practices that equate speaking voice with rational voice have led to the exclusion of autistic voice in research; (2) technologies such as augmentative and alternative communication, including computers and tablets, can be both emancipatory and oppressive; and (3) researchers who commit to the practice of ethical listening improve opportunities for non- or minimally speaking autistic individuals to participate in research.

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Lebenhagen, C. (2020). Including Speaking and Nonspeaking Autistic Voice in Research. Autism in Adulthood, 2(2), 128–131. https://doi.org/10.1089/aut.2019.0002

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