Abstract
A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
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Hutsebaut, J., Janssens, W., Louis, R., Willersinn, F., Stephenne, X., Sokal, E., & Derom, E. (2015). Activity of the alpha-1 antitrypsin deficiency registry in Belgium. COPD: Journal of Chronic Obstructive Pulmonary Disease, 12, 10–14. https://doi.org/10.3109/15412555.2015.1021916
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