How can HCI support end-of-life care? Critical perspectives on sociotechnical imaginaries for palliative care

Abstract

Designing technologies in the palliative care environment is difficult due to the sensitivity of the context and vulnerability of the patients and their families in a critical stage of life. We conducted two focus groups with 9 healthcare workers to capture sociotechnical imaginaries to support physical, psychological, social and spiritual aspects of the patient care in the palliative environment. The findings reveal recurring themes of care: expressing respect in safe spaces, transitioning into the unknown and experiencing home again, taking opportunities for uplifting care, communication for empowerment and risk mitigation, and connection to support networks. These are discussed through a lens of the materiality of care provided to patients, where tangible materials of care are entwined with patients' values and culture. This in turn offers insight into opportunities for palliative care technology.