O impacto da funcionalidade e participação social de crianças com paralisia cerebral na qualidade de vida dos pais

Abstract

Abstract Cerebral palsy motor disorders (CP) are alterations that cause limitations in functionality and impact on activities, intensifying dependence on the caregiver and altering family dynamics. The objective of the research was to analyze the relationship between the motor function, socioeconomic level, and social participation of children with CP, and the quality of life of their parents. Parents of children diagnosed with CP aged between 3 and 14 years were evaluated on: socioeconomic level, quality of life (through the WHOQOL Bref questionnaire), global functionality, through the Pediatric Evaluation of Disability Inventory (PEDI), and social participation of your children, through the scale LIFE H. 13 parents of children with CP participated, with a mean age of 7.92 (± 2.90). The GMFCS ranged from I to V, with a predominance of level III (38.5%). A positive correlation was obtained between the psychological domain of the WHOQOL and 81% of the domains of social participation, in addition to the relationship between the domains of self-care and social function with quality of life. Negative correlations were found between the GMFCS and social participation. There was no correlation between motor function or income and caregivers’ quality of life. Higher levels of social participation of children with CP contribute to psychological health and quality of life for parents. The greater the need for assistance from the caregiver, the less interaction with the social environment.