Desiderata for the Data Governance and FAIR Principles Adoption in Health Data Hubs

Abstract

The objective of this study, as part of the European HealthyCloud project, has been to analyse the data management mechanisms of representative data hubs in Europe and identify whether they comply with an adequate adoption of FAIR principles that will enable data discovery. A dedicated consultation survey was performed, and the analysis of the results allowed to generate a set of comprehensive recommendations and best practices so that these data hubs can be integrated into a data sharing ecosystem such as the future European Health Research and Innovation Cloud.