‘Out There’: Developing a transition pathway for adolescents and young adults with cancer using Experience-Based Co-Design

Abstract

Experience-based co-design (EBCD) was used in the adolescent and young adult (AYA) oncology setting to develop a transition pathway from hospital for young adults completing cancer treatment. The EBCD methodology provides the opportunity to embed patient experience and input into service design. In this project staff and AYAs identified unmet needs and suggested working packages around psychological support, and provision of information about fertility, work, education, and relationships. Staff identified deficits in knowledge of survivorship issues for AYAs and interest in preparing AYAs for life after treatment.