POS0060-PARE UNDERSTANDING THE PATIENT PERSPECTIVE IN LIVING WITH AND TREATING SPONDYLOARTHRITIS

Abstract

Background: Spondyloarthritis (SpA), the group of conditions that includes ankylosing spondylitis, psoriatic arthritis, and non-radiographic axial spondyloarthritis among others, can lead to symptoms of pain, stiffness, and swelling. The burden of disease can affect patients' quality of life Objectives: Patient research was undertaken to explore the impact of spondyloarthritis on quality of life, patients' ability to manage the disease, as well as experiences with healthcare providers. Better understanding is crucial to improving HCP-patient interactions, helping patients get on the right treatment path and improving health outcomes Methods: In July 2022 an email invitation to an online survey was sent to members of MySpondylitisTeam, a social network of over 88,000 people. In total, 361 members completed the 25-question survey Results: 92% of members report that spondyloarthritis interrupts their quality of life (62% strongly agree and 30% somewhat agree) (Figure 1). SpA takes both a physical and emotional toll. 88% report it makes it hard to do everyday activities (54% strongly agree and 34% somewhat agree). Symptoms extend well beyond lower back, joint and hip pain (92%, 84%, and 81% experienced in the past year respectively). Virtually all experience fatigue (91%). Additionally, 61% have experienced symptoms of depression (63%) or anxiety (61%) in the past year At the same time, just 52% believe they can ask doctors and have meaningful discussions about SpA and how best to manage it (27% strongly agree and 25% somewhat agree) (Figure 2). Only 35% are satisfied with the care they receive from the doctor who primarily treats their SpA. 38% indicate that the doctor recommends treatment based on their personal needs, and 36% indicate that the doctor addresses their SpA symptoms Figure 1. Impact on Quality of Life How much do you agree or disagree with each of the following statements? (Sample=361) Figure 2. Patient Discussions With Doctors Which of the following reflect the discussions you have with the doctor who primarily treats your spondylitis? Please select all that apply. (Sample=304) Conclusion(s): Understanding the needs of SpA patients provides significant opportunities for rheumatologists and primary care physicians to better support and educate their patients. This includes discussing potential treatment options listening to patient concerns, and acknowledging the mental health challenges.