Hear Our Voice: A Photo-Elicitation Study to Explore the Social Participation of Older People With Mild/Moderate Intellectual Disability

Abstract

Background: People with intellectual disability are more socially isolated than the general population. Aims: To explore the social participation experiences and enablers and barriers of older people with mild/moderate intellectual disability. Methods: Following co-production of the research with an advocacy group, we purposively recruited people aged over 50 with mild/moderate intellectual disability, using photo-elicitation methods and qualitative interviews, analysed thematically. Results: We recruited 14 participants (5 women) from London, UK. Themes were (1) negotiating social belonging in a world of barriers, (2) obstacles go beyond intellectual disability, (3) support must be tailored and personalised. Their experiences of discrimination made them afraid to go out and often to mix with people without disabilities. However, they enjoyed socialising, appreciating variety, social connection and learning. Conclusion: People with intellectual disability wished to socialise but encountered multiple obstacles. Such barriers limit meaningful community engagement and inclusivity, underscoring the need for interventions to combat isolation.