Lesbian and bisexual breast cancer survivors’ post-treatment resource needs

Abstract

Purpose: The purpose of our study was to identify and describe determinants of lesbian and bisexual breast cancer survivors’ post-treatment resources. Methods: We used a cross-sectional descriptive study design. The data reported here were gathered as part of OUT: The National Cancer Survey, administered electronically from September 2020 to March 2021 via social media and community partners. We used descriptive statistics, Fisher’s exact tests, and thematic analysis to analyze survivor perceptions of information availability, treatment environment, care plans, social support, and health. Results: Of those who participated in the survey, (N =430) 366 identified as lesbian, and 64 identified as bisexual. Mean age was 58.6 years (range 21 – 91 years). Fewer than 11% of our sample indicated they could find helpful information about being a queer person with cancer during their treatment. Over 75% of our sample that received a cancer survivorship care plan indicated that their plan did not include resources for queer individuals. Conclusions: Affirming cancer treatment environments and resources tailored to the needs of lesbian and bisexual breast cancer survivors are critical for reducing disparities. Implications for Cancer Survivors: Survivorship care plans should include resources for queer individuals as a part of holistic cancer care.