Responsiveness and Relationship Satisfaction in Couples Coping With Parkinson’s Disease: A Pilot Study

Abstract

Parkinson’s disease (PD) is a neurodegenerative disorder which impacts the person’s physical, psychological and relational well-being, and the well-being of their romantic partner, who is often in a caregiving role. People with PD may struggle to empathize with and respond to their partner’s emotional states, which can hinder relationship satisfaction for both partners. Care partners, who may feel burnt out from caring for their partner’s physical and cognitive needs, may be limited in their ability to be responsive to their spouse’s relational needs, which can hinder satisfaction. Despite the challenges faced by couples coping with PD, little work has considered the interpersonal factors associated with relationship satisfaction for affected couples. In the current study, we investigated individual differences in the motivation to be responsive to a partner’s needs (i.e., communal strength), as well as perceptions of a partner’s responsiveness (i.e., the extent to which a person perceives their partner to care for, validate, and understand them). We recruited 20 couples in which one partner was diagnosed with PD and their romantic partner self-identified as a full-time caregiver, in order to examine how responsiveness is associated with both partners’ relationship satisfaction. When partners with PD reported higher communal strength, they reported higher relationship satisfaction and so did their care partner. When partners with PD perceived their care partner to be more responsive, they reported higher relationship satisfaction. These findings provide some preliminary evidence for responsiveness as one interpersonal factor worthy of further consideration for helping couples cope with PD.