An Opportunity to Partner with Community Organizations to Collect Data on Asian Americans.

Abstract

Background: There is a shortage of health data for Asian American (AA) populations. This shortfall may be improved through the involvement of AA-serving community-based organizations (CBOs). Objectives: This study assesses the feasibility of and interest among CBOs in creating a AA community-based data registry. Methods: Leaders of CBOs were interviewed to assess their current data collection framework and their attitudes towards a shared data registry. Results: Qualitative analysis shows CBOs are active in data collection, find data to be instrumental to their mission, and are interested in contributing to a broader data registry. Discussion: The inclusion of CBOs in large-scale survey efforts may indeed yield more valuable data regarding specific AA subpopulations relative to that which is currently collected by national survey efforts. Such a partnership would be beneficial to CBOs as well, as data collection challenges could be alleviated by the creation of a uniform data registry. [ABSTRACT FROM AUTHOR]