Journal ArticleOPEN ACCESS

Epidemiology of the Global Fibrodysplasia Ossificans Progressiva (FOP) Community

  • Liljesthröm M
  • Pignolo R
  • Kaplan F
Journal of Rare Diseases Research & Treatment (2020) 5(2) 31-36
DOI: 10.29245/2572-9411/2020/2.1196
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Abstract

Background: Fibrodysplasia Ossificans Progressiva (FOP) is an ultra-rare disease, but the geographic distribution and regional prevalence of the condition are unknown. This study was undertaken to determine the emerging global population of FOP patients who were associated with a regional, national or international FOP organization.

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Liljesthröm, M., Pignolo, R., & Kaplan, F. (2020). Epidemiology of the Global Fibrodysplasia Ossificans Progressiva (FOP) Community. Journal of Rare Diseases Research & Treatment, 5(2), 31–36. https://doi.org/10.29245/2572-9411/2020/2.1196

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