An act of agency: people with albinism in Tanzania creating change

Abstract

The contact strategy has proven to be effective in reducing stigma in relation a variety of disabilities and health-related conditions. This strategy requires people to be willing to present on their condition. This study explored what the considerations are of ‘spokespersons’ to do so. Semi-structured in-depth interviews were conducted. Informants (13) expressed how they felt about presenting, that it gave them the opportunity to develop themselves and to increase their status and confidence. Informants felt responsible for making a change in society and experienced their presentations as an effective strategy. The informants did not consider presenting themselves as a risk, as long as the necessary security arrangements are made, and proper training is provided. Recommendations are provided for the implementation and development of contact interventions in relation to health-related stigma.