Being different: what it means to be a person with albinism in Nigeria

Abstract

Persons with albinism experience visual impairments and have unusually white hair and skin colour. In Nigeria, they face social disadvantages due to misconceptions about albinism, which create barriers to equal participation in education, employment, and society. This study explored the life stories of persons with albinism in Nigeria to understand the meanings they ascribe to their experiences. Using a Constructivist Grounded Theory methodology, forty-two interviews were conducted with eleven persons with albinism. ‘Being Different’ emerged as the main theme representing the life experiences of persons with albinism in Nigeria from childhood to adulthood. Participants expressed ‘Being Different’ through subthemes such as ‘being in a tug of war’, ‘disadvantaging schooling system’, and ‘suffering double tragedy’. The study concludes that strongly enforcing anti-discrimination laws, promoting inclusive education, and regularly educating the public about albinism can significantly reduce the negative effects of ‘Being Different’ in Nigeria.