Towards a better understanding of patient expectations: ONCOPREMs-1 study—a qualitative study

Abstract

Introduction: As part of a broader study entitled OncoPREMs, which aims to develop a tool to assess patients’ experiences throughout their oncology care pathway, we explored patients’ perceptions and expectations from the first signs of illness to the post-cancer phase, as well as their experience of living with cancer. Methods: A qualitative study was conducted using semi-structured interviews with patients who had been treated or were undergoing treatment for cancer in various healthcare facilities in France. Patients were recruited by healthcare professionals at their care sites. Results: A total of 28 interviews were conducted between May and August 2023 (14 men, 14 women). The most common types of cancer were breast, digestive, and urological cancers. Thematic analysis identified several key themes related to the patient experience: the period of disease discovery and diagnosis; treatment follow-up and management of side effects; and the post-cancer phase or “living with cancer.” Conclusion: The results of this study show that the different stages of the care pathway generally meet the expectations and needs of patients treated for cancer. However, patients expressed hopes for further developments, such as more support and guidance for their caregivers from healthcare professionals.