Genome Privacy and Trust

8Citations
Citations of this article
11Readers
Mendeley users who have this article in their library.

Abstract

Genomics data are important for advancing biomedical research, improving clinical care, and informing other disciplines such as forensics and genealogy. However, privacy concerns arise when genomic data are shared. In particular, the identifying nature of genetic information, its direct relationship to health status, and the potential financial harm and stigmatization posed to individuals and their blood relatives call for a survey of the privacy issues related to sharing genetic and related data and potential solutions to overcome these issues. In this work, we provide an overview of the importance of genomic privacy, the information gleaned from genomics data, the sources of potential private information leakages in genomics, and ways to preserve privacy while utilizing the genetic information in research. We discuss the relationship between trust in the scientific community and protecting privacy, illuminating a future roadmap for data sharing and study participation.

Cited by Powered by Scopus

Genetic data are not always personal - disaggregating the identifiability and sensitivity of genetic data

4Citations
N/AReaders
Get full text

New trends in marketing and consumer science

2Citations
N/AReaders
Get full text

Future-proofing genomic data and consent management: a comprehensive review of technology innovations

2Citations
N/AReaders
Get full text

Register to see more suggestions

Mendeley helps you to discover research relevant for your work.

Already have an account?

Cite

CITATION STYLE

APA

Gürsoy, G. (2022, August 10). Genome Privacy and Trust. Annual Review of Biomedical Data Science. Annual Reviews Inc. https://doi.org/10.1146/annurev-biodatasci-122120-021311

Readers over time

‘22‘23‘2402468

Readers' Seniority

Tooltip

PhD / Post grad / Masters / Doc 2

50%

Researcher 2

50%

Readers' Discipline

Tooltip

Medicine and Dentistry 2

50%

Biochemistry, Genetics and Molecular Bi... 1

25%

Computer Science 1

25%

Save time finding and organizing research with Mendeley

Sign up for free
0