Crowdsourcing health literacy: The case of an online community

Abstract

Drawing on data from 31 semi-structured, in-depth interviews, participant observation, and online archives analysis, this paper examines the health information interactions that participants in an online breast cancer community experienced as they progressed through breast cancer and survivorship. The findings reveal This research highlights patients' perceptions of information gaps, how patients navigated through their information gaps with the help of the community, and the significance of peer interaction in the comprehension of medical information and medical decision-making.