Qualidade de vida dos pacientes portadores de síndrome de Stevens-Johnson

Abstract

Purpose: To assess the quality of life in patients with Stevens-Johnson syndrome (SJS). Methods: Fourteen patients with SJS were evaluated between 1998 and 1999 at the External Disease and Cornea Service of the Dept. of Ophthalmology of UNIFESP. We used a S.F. 36 questionnaire. The score for the seven subitems was given based on described formula. High scores mean a better life condition. The same questionnaire was repeated 4 times in a 3 months period. Results: The means of the means of the 4 questionnaire values for the 14 patients were decreased in all S.F. 36 subitems (41.04±22.38 for physical aspects, 53.82±22.82 for social aspects, 26.24±22.46 for emotional aspects, 34.95±25.45 for functional aspects, 42.03± 31.85 for pain, 46.33±18.37 for vitality, 46.18±24.83 for mental health and 50.26±16.29 for general health). Conclusions: The S.F. 36 questionnaire is an important method to assess physical and emotional aspects of patients with low vision. It allowed us to detect important limitations in patients with SJS.