Cross-Cultural Adaptation and Content Validity of the the Patient Decision Aid “Making Choices: Feeding Options for Patients with Dementia” to Brazilian Portuguese Language

Abstract

Purpose: Cross-cultural adaptation to Brazilian Portuguese and evaluation of content validity of a patient decision aid to help in choosing the feeding route for patients with severe dementia entitled “Making Choices: Feeding Options for Patients with Dementia”. Methods: The cross-cultural adaptation involved two independent translations, synthesis of translations, two independent back-translations, their synthesis, and pretest with 30 caregivers. Content validation was based on analyzes of 35 Brazilian specialists (physicians, speech-language therapists and nurses experienced in caring for patients with severe dementia) through measures of content validity index and concordance between multiple judges by Fleiss’ kappa. Results: The level of comprehension of the instrument by caregivers in the pretest was almost perfect. The specialists committee considered the contents of the instrument valid, in a statistically significant way. Conclusion: The patient decision aid in Brazilian Portuguese entitled “Fazendo escolhas: opções de alimentação para pacientes com demência” obtained evidence of cross-cultural equivalence and content validity for use in the Brazilian population. Further studies are needed to assess its effects on the decision-making process in our population.