Extending the Austrian National EHR System with Patient-Reported Outcome Data

Abstract

The Austrian national Electronic Health Record system ELGA is a population-based infrastructure for health data. However, to date, it does not include patient-reported outcomes. In this paper, we describe on-going work on extending ELGA with patient-reported outcome data. This will be done by linking ELGA with the infrastructure of the Health Outcomes Observatory (H2O) initiative. The focus will be on using ELGA's identifier registry for H2O patients and making H2O outcome data accessible in ELGA via an existing ELGA document type for telemonitoring.