“Mata de tristeza!”: Representações sociais de pessoas com vitiligo atendidas na farmácia universitária da universidade federal do Rio de Janeiro, Brasil

Abstract

Vitiligo is characterized by white spots on the skin. During the dispensation of Methoxypsoralen, a drug used for treating it, patients reported discomfort regarding such therapy and their disease. Thus, the study has the motivation of seeking to understand the experience of being ill, using a socio-anthropological, theoretical and methodological approach. Subjects’ worldview after the diagnosis of vitiligo was apprehended by interviews with UFRJ pharmacy users. The subjects tend to consider having vitiligo “a punishment”, and they feel like a target of “mockery”, “prejudice” and “discrimination”. It is a fact that vitiligo is not taken as a severe condition, and this establishes a “non-place” for the suffering of its bearers. Symbolic, emotional, and socio-cultural aspects of the disease must be taken into account, in order to improve health care for these subjects and their lives. Health professionals need to perceive vitiligo bearers beyond their “spots”.