Impacto na vida de mães cuidadoras de crianças com doença crônica

Abstract

This qualitative study examined the impact of children’s chronic illnesses on the lives of their caregiver mothers. Five mothers, whose children were hospitalized in the pediatric ward of a public hospital in Paraiba State, were interviewed from January to March, 2010. The analysis, guided by the principles of thematic interpretation, ascertained that the diagnosis was the most difficult moment for the mothers, and led to a variety of impacts on their lives. These resided in day-to-day care and were associated with changes in lifestyle and social interaction. Spirituality contributed to adaptation, and the experience of illness generated important learning for the mothers as regards ways to move on. Highlighting what is unique, while considering biopsychosocial and spiritual aspects, contributes to changing the present paradigm towards more comprehensive care.