The search for an explanation: Breast cancer in the context of genetic inheritance

Abstract

This case study is an in-depth examination of how Erika (a pseudonym) interpreted and understood her genetic test results for, breast cancer susceptibility. Her experience is presented in the form of a biography, which was built from key passages retrieved from the semi structured interview the author conducted at Erika's home. The interview data showed that Erika's interpretation and understanding of her inconclusive test results were embedded in her own and her family's experiences with breast cancer. Her interpretation of her test results was influenced by perception of risk for future breast cancers for herself and her family, as well as from the continued etiological uncertainty of her current breast cancer. Although unfinished, Erika's experience of receiving inconclusive genetic test results for breast cancer susceptibility provides examples of possible universal themes within the experience of others who receive similar test results.