Unveiling the Hidden Challenges: A Systematic Review of Self-Identified Caregiver Support Needs for Older Adults in Canada

Abstract

Objective: In Canada, over 7.8 million individuals provide care, with nearly one-quarter aged 65 or older. As essential partners in aging, caregivers bridge formal care systems and the broader care economy. With caregiving demands expected to double over the next 30 years, identifying and addressing caregivers’ evolving support needs is critical to sustaining compassionate, connected care. This systematic review aims to document caregivers’ self-identified support needs in delivering quality care. Methods: A systematic search of bibliographic databases and grey literature was conducted in line with PRISMA guidelines and supplemented by reference mining. Eligible studies were peer-reviewed, published in English between 2020 and 2025; reviews and grey literature were excluded. Selection was managed using Covidence, and methodological quality was assessed independent by two reviewers utilizing Joanna Briggs Institute tools. Results: Of 3,629 records, 83 studies were included: 59 qualitative, 17 quantitative, and 7 mixed-methods. Five key themes with twelve sub-themes emerged, reflecting caregivers’ needs related to system navigation, inclusive technologies, coordinated care system, emotional and practical, and financial/workplace resources. Conclusion: Caregivers’ insights highlight priority areas to inform caregiver-centred policies, services, and research that enhance caregiver wellbeing and care quality for older adults.