Sopro de vida: Experiência com a doença pulmonar obstrutiva crônica na pobreza urbana de Fortaleza, Ceará, Brasil

Abstract

This is an anthropological study on the experience of living with chronic obstructive pulmonary disease (COPD) for low-income individuals in the city of Fortaleza, Ceará State, Brazil. From March to November 2006, we conducted case studies of six patients, using ethnographic interviews, illness narratives, and participant-observation during hospital treatment and home visits. Thematic context analysis and contextualized semantic analysis were used to link individual experience to system of significance, actions taken, and structural constraints. Based on the findings, COPD provokes subjective sensations, signs, and meanings. The diagnosis "smothers" patients, provoking hardships and limitations in their manual, sexual, domestic, family, and leisure activities. Lay strategies used to confront acute shortness of breath and low self-esteem include: avoiding direct contact with the patient's "phlegm", quitting or reducing smoking, treating symptoms with home remedies and popular body therapies, remaining calm during attacks, rejecting imposed therapies, and surrendering one's self to spiritual powers. Thus, the subjectivity of illness cannot be excluded from the measurement of the "global burden of disease" in Northeast Brazil.