Preliminary Findings of Caregivers’ Burden among Parents of Adolescents with Anorexia Nervosa: An Exploratory Study

Abstract

Background: The multifactoriality of Anorexia Nervosa (AN) and the specificity of the treatment that provides for the compliance of parents (caregivers) is consolidated in the scientific literature. Caregivers’ burden, in addition to negatively affecting parents’ Quality of Life (QoL), can act as a maintenance factor for the disorder itself. Aim: Within a much broader research project, this work focuses on a preliminary analysis of the presence and level of burden in couples of parents of adolescents with Eating Disorders (EDs) and related variables. Methods: At a clinic dedicated to EDs, three couples of parents (mean age = 47.50; SD = 2.73) of three female patients with AN (mean age = 16; SD = 1.78), prior to taking charge, which includes protocol, psychoeducation, and family psychotherapy meetings. Caregivers completed a questionnaire consisting of standardized screening tests for assessing psychological assets: (a) Depression Anxiety Stress Scale-21 (DASS-21), (b) Family Strain Questionnaire—Short Form (FSQ-SF), (c) Resilience Scale (RS), and (d) semi-structured interview. Results: High levels of anxiety (18 ± 6.9), stress (13.33 ± 10.26), and depression (12 ± 6.9) are found in mother caregivers, while father caregivers are more resilient (57.33 ± 8.5). A high level of caregivers’ burden was associated with being unemployed (3.33 ± 2.51), being a mother (4.33 ± 1.52), and with a highly pathological patient to care for (3 ± 4.24). Conclusions: Evaluating family caregivers of ED patients for risk factors of burden allows them to offer care and reduce the perceived stress of care.