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Nothing about us without us: Advocacy and engagement in genetic medicine

Science Translational Medicine
DOI: 10.1126/scitranslmed.adn2401
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Abstract

The development of new genetic medicines to treat sickle cell disease highlights the need for greater collaboration between researchers and people with lived experiences. Drawing on the adage “Nothing about us, without us,” we call for increased investments in community advocacy and engagement.

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APA

Olayiwola, O., Castillejo, A., Louella, M., Supercharger, M., Harlow, E., Dee, L., … Dubé, K. (2024, May 8). Nothing about us without us: Advocacy and engagement in genetic medicine. Science Translational Medicine. American Association for the Advancement of Science. https://doi.org/10.1126/scitranslmed.adn2401

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