Needs detection for carers of family members with dementia

Abstract

Aim: To determine the perceived needs of carers of non‐institutionalized family members that suffer from dementia. Methods: Two‐steps qualitative study by focus groups of relatives in three centres of different characteristics from the Girona Health Region (step 1) and two in‐depth interviews with significant professionals in dementia care (step 2). The analysis was performed based on the interpretation of the transcribed data and the bottom‐up coding of categories and themes. The information was triangulated and coding was agreed upon. Results: There were three groups, 26 main carers of community‐dwelling relatives with dementia in step 1 and two in‐depth interviews with dementia‐specialised healthcare and social care professionals in step 2. The demands were categorised according to three main themes: whether they were addressed to the members of care services for more direct and close care, to the agencies for a better joint working and less fragmented system, or to society for better comprehension and social recognition. We emphasize the need for a consultation‐liaison reference figure throughout the process both for aspects of greater efficiency in the management of resources and for greater empowerment of carers.