A follow-on study on vision-related quality of life assessment using the NEI-VFQ-25 in those with a history of unilateral and bilateral congenital cataracts

Abstract

Purpose: To assess vision-specific health-related quality of life (using the NEI-VFQ-25), educational attainment and visual acuity (VA) in patients with a history of congenital cataracts and appraise these in relation to Kirwan et al.'s (Pediatr Ophthalmol Strabismus 49, 2012, 26) study. Methods: A retrospective hospital-based study of patients with unilateral and bilateral congenital cataracts whounderwent surgery aged younger than 12 months. Those 13 years or older at follow-up were selected for inclusion. Patients with glaucoma, other associated ocular complications or systemic abnormalities were excluded. Educational attainment and VA at latest review were recorded. Results: Twelve patients with unilateral cataract (mean age: 26 ± 4.5) and fifteen with bilateral cataract (mean age 22 ± 4.3) were included. Bilateral group had greater difficulty with near and distance activities, vision-specific role difficulties, vision-specific dependency and general health than the unilateral group. There were no significant differences with regard to ocular pain, vision-specific social functioning, vision-specific mental health, driving, colour vision, peripheral vision or educational attainment between the groups. All patients attended mainstream school, and majority progressed to third-level education. Follow up at an increased time from surgery − 6.2 ± 5.13 (unilateral) and 6.5 ± 6.4 years (bilateral) – compared to Kirwan et al.'s study. Conclusion: Results were in keeping with Kirwan et al.'s. Bilateral group had greater difficulty with day-to-day tasks compared to the unilateral group, including near and distance vision activities. They had greater vision-specific role difficulties and vision-specific dependency. There was no difference between the groups in regard to vision-specific social functioning, vision-specific mental health or educational attainment. This can be a source of reassurance to parents and patients.