Skip to main content

Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion

  • Kelly L
  • Potter C
  • Hunter C
  • et al.
N/ACitations
Citations of this article
16Readers
Mendeley users who have this article in their library.

Abstract

Purpose: It is a key UK government priority to assess and improve outcomes in people with long-term conditions (LTCs). We are developing a new patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), for use among people with single or multiple LTCs. This study aimed to refine candidate LTCQ items that had previously been informed through literature reviews, interviews with professional stakeholders, and interviews with people with LTCs. Materials and methods: Cognitive interviews (n=32) with people living with LTCs and consultations with professional stakeholders (n=13) and public representatives (n=5) were conducted to assess the suitability of 23 candidate items. Items were tested for content and comprehensibility and underwent a translatability assessment. Results: Four rounds of revisions took place, due to amendments to item structure, improvements to item clarity, item duplication, and recommendations for future translations. Twenty items were confirmed as relevant to living with LTCs and understandable to patients and professionals. Conclusion: This study supports the content validity of the LTCQ items among people with LTCs and professional stakeholders. The final items are suitable to enter the next stage of psychometric refinement.

Cite

CITATION STYLE

APA

Kelly, L., Potter, C., Hunter, C., Gibbons, E., Fitzpatrick, R., Jenkinson, C., & Peters, M. (2016). Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion. Patient Related Outcome Measures, Volume 7, 183–193. https://doi.org/10.2147/prom.s116987

Register to see more suggestions

Mendeley helps you to discover research relevant for your work.

Already have an account?

Save time finding and organizing research with Mendeley

Sign up for free